Become a member

EU-IPFF is welcomes applications from new members to join the fight against IPF/PF and related disorders.

As per our Statutes, there are two types of membership:

1.)    Full members

Full members represent national associations from European countries focusing on IPF/PF and allied disorders. They include the founding members and new members, which are accepted after a trial period of one year and ratification by the General Assembly by a three quarter majority of present or represented full members. They are subject to the provisions of the statutes and the rules of procedure. Full members, which are up-to-date with their membership fee, have the right to participate in meetings of the Association with full voting rights. All full members must share the objectives of EU-IPFF and be free from political, commercial or government ties.

If you want to become a full member, please click HERE to check out the membership criteria for full members and fill out the application form.

2.)    Associate members

Organisations or individuals who subscribe to the objectives of the Association and are accepted by the Board.  In the category “associate members” we distinguish between

• Individuals: are allowed to be Associate Members only if they can demonstrate plans to establish an IPF/PF patient group in a European country in which there is no one yet. They can be invited to join internal EU-IPFF meetings, at their own cost, but do not have voting rights.

• Partners: European associations of relevance (e.g. rare diseases, lung health, clinical etc.) and non-European groups focused on or with activities in the area of rare diseases, lung health or IPF/PF etc. They can be invited to EU-IPFF meetings, at their own cost, but do not have voting rights.

• Supporters: Local or regional support groups for IPF/PF and other related diseases. They cannot join internal EU-IPFF meetings and do not have voting rights.

Annual General Assembly but have no voting rights; their rights and obligations are set out in the Rules of Procedure.

If you want to learn more about the types of associate membership and how to become an associate member, please refer to our Associate Members leaflet. To apply for a membership, please please click HERE to check out the membership criteria for associate members and fill out the application form.

To be accepted as a full member of the Association, you will have to fulfil the following criteria:

• Not-for-profit organisation

• Based in a country that is part of “geographical Europe” (= EEA member states + Belarus, Russia, Ukraine, Moldova and Baltic states not in EU). Please note: National organisations based in countries not covered by the above definition (e.g. Israel, Turkey, and others) can become associate members only.

• Permanent character (i.e. organisations set up to implement a time-limited project or campaign will not be accepted as members of EU-IPFF)

• Formal registration as an NGO with country wide operations (or across multiple countries) OR in process of becoming a formally registered entity OR with the intention to become formally registered

• Focus on IPF/PF patient advocacy and on supporting IPF /PF patients

• Proven activities on IPF/PF

• The leaders of the organisation are IPF/PF patients themselves or relatives of IPF/PF patients

• Proven willingness and ability to contribute to the work of EU-IPFF

As a full member of EU-IPFF you will be invited to attend and vote during the General Assembly and other relevant meetings during the year. You will also contribute to EU-IPFFs policy and advocacy activities and will receive regular updates and information on all of our projects. 

The member fee is 100 Euros per year.

To apply for membership, please click here and complete the application form and provide the requested documents (latest annual report and accounts, statutes of your organisation). With your registration, your organisation agrees to contribute to the development of EU-IPFF, as well as to share expertise and experience with other EU-IPFF members.

All requests for membership are examined on a case-by-case basis. A committee will review the request and reserves the right to accept or reject the same.

After submission, our team will review your application and get back to you in due course. If you have any questions on how to fill out the form or require more information, please feel free to send an email to secretariat@eu-ipff.org.

Please find the application form here

Full member application form

To be accepted as an associate member of the Association, you will have to fulfil the following criteria:

• Not-for-profit organisation

• Unable to meet all eligibility criteria of full members, e.g. organisations based in a country that is NOT part of “geographical Europe” (= EEA member states + Belarus, Russia, Ukraine, Moldova and Baltic states not in EU).

• Be an individual, partner or supporter as per the above definitions

• Proven activities on IPF/PF or related diseases

• Proven willingness and ability to contribute to the work of EU-IPFF

As an associate member of EU-IPFF you will enjoy the following rights:

• Partners can be invited to attend the General Assembly, at their own expenses.

• All Associate members have the right to be informed by the Federation on its activities (by receiving the EU-IPFF newsletter and other relevant communications);

• All Associate members have the right to have their logo and contact details included in the EU-IPFF website.

Associate members do not have the right to vote.

To apply for membership, please click here and complete the below application form. With your registration, your organisation agrees to contribute to the development of EU-IPFF, as well as to share expertise and experience with other EU-IPFF members.

All requests for membership are examined on a case-by-case basis. A committee will review the request and reserves the right to accept or reject the same.

After submission, our team will review your application and get back to you in due course. If you have any questions on how to fill out the form or require more information, please feel free to send an email to secretariat@eu-ipff.org.

Please find the application form here

Associate member application form

Corporate sponsorship packages 

If you are interested in becoming a corporate sponsor, you will have the choice of three different levels.
Each sponsorship level will mean that your company will be both acknowledged on the EU-IPFF website
as well as being invited to some of our events.
The more contribution you provide, the more advantages there are.

Individual Project Sponsorship

If interested, there is also the possibility to sponsor a specific project that EU-IPFF is planning; may it be a creative awareness campaign, marathon or an international policy event. If you are interested in sponsoring a specific project, there are two options.

Please note that as a corporate sponsor you have no voting right.

If you are also interested in supporting EU-IPFF and require further information,
please do not hesitate to contact secretariat@eu-ipff.org.